Latest posts
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Resettling
When I try to think what to write to clear my head, I’ve found it hard to find the words. The last few days have been a strange mix of everything. I need my emotions to resettle soon. I think that last statement sums it up, actually. I was so elated last week, watching Vernon…
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Concert on the Courtyard
It was party time at Mesa Verde today! I’d brought Chris Adams up with me because I wanted him to see how much better Vernon was doing. Chris has been there for all the ‘waking’ stages, so he needed to be there for this one too! I also wanted him to meet Mike and see…
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Wired for Touch
Things seem to be moving so fast, suddenly; I’m afraid if I don’t record the passing details, I’ll forget them in the tumbleweed of activity that we are happily caught up in. I sat with Vernon through dialysis again today. He was difficult at the beginning, when they were hooking him up to the machine,…
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Going to the Mat
“If you want to find the secrets of the universe, think in terms of energy, frequency and vibration.” —Nicolai Tesla I always knew I would call Mike, when it was time to bring in alternative therapies for Vernon. I just thought it would be under different circumstances. I pictured ourselves at home again, possibly at the end of…
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Sea Change
Suddenly the world is shifting. I am aware of things starting to tip, hoping to find re-balance. Vernon puts on a few pounds, Joe loses 8. While I am playing scientist, my daughter, who wanted to be a doctor as well as a scientist, now announces she wants to be an actress. Maki spends his winter in New…
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Ativan
A few weeks ago, I asked the Doctor to cut Vernon’s Ativan dose in half. I kept thinking of how he seemed to have slipped so far downward in the last months and realized that was the main thing that had changed. Earlier in the year, he was moved to 4 days a week from…
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A Couple of Fab-Foursomes, An Old Guitar, and Yoko Ono
My first stop at the Care Home today was the Multi-Purpose Room. In the mornings, Vernon is often brought into this for room some light babysitting and entertainment. He wasn’t there, but even at 10 am, the room was rocking. Apparently the Karaoke Machine has been powered up every single morning since it was set up two…
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The Little Princess
From Tuesday (last) night: I’ll journal something about our biennial family reunion soon. It was very special. Today though, Justine is the main thing on my mind. She had a great time in Kansas, especially running around with the cousins. But after a few days, she got a little cranky with me, lashing out and throwing shade.…
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The Sculptor
Maki’s mother sent over these wonderful pictures of the sculpting work he has been doing this summer. He’s always been great at making images but he seems to enjoy creating in 3-D the most. With his permission, I’m sharing these here as I know most people who follow our family’s story have a big space…
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U-Turn
It has been harder for me to write about some of the latest developments in Vernon’s journey—mostly because I’m still trying to get my head around them myself. Not much has changed to look at him, but a couple of months ago (or less?) I spoke with the doctor, who told me that if Vernon doesn’t get…