Latest posts

  • Tuning In

    I haven’t taken the children up on their usual weekend visit for awhile—partly because I’ve spent the last couple of Saturdays at dialysis instead. Also, I knew that the fact Vernon hadn’t been improving was getting hard for Maki to see week after week, so I let him take a little time off. I know its good for…

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  • On Writing

    “A writer is somebody for whom writing is more difficult than it is for other people.” —Thomas Mann I haven’t known what to write this week, so I haven’t. I don’t know what to write tonight, either. But I will. I’ve been writing this blog for nearly a year. Why stop now, right? I didn’t…

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  • Mother’s Day

    May seems to be booby-trapped with surprise triggers. I start out the day hopeful and something small sets me off emotionally. It’s going to be an interesting month. But we are 1/3 of the way through so I’m feeling positive…just being watchful and gentle on myself. I had a wonderful pre-mother’s day week with Justine.…

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  • Comparisons

      This morning, I somehow came across a news article about Michael Schumacher’s wife selling his private jet and holiday home.  You may remember who Michael Schumacher is: a seven-time Formula One World Champion and is widely regarded as one of the greatest Formula One drivers of all time. He also fell victim to a major brain…

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  • Purpose In Life

    We are all here on earth to help others: what on earth the others are here for I don’t know. —W.H. Auden I often wonder why this recovery process has to take so long. Why it has to be moving so slowly. Every once in awhile, as an answer, this thought comes back to me: because there…

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  • May

    “What potent blood hath modest May” —Ralph Waldo Emerson So here we are: May. It hasn’t been a full year yet, but we’ve entered the month. And with it come the memories and repeats of things done this time last year. I remember being more tied to the manifestation of seasons when we lived in England. We…

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  • Dialysis

    I’ll admit it. The past couple of weeks have been pretty discouraging. I’ve written several posts about the Dialysis problems lately, so I don’t want to go on and on about the details (some of which are too personal to share on this forum.) But it has been a constant source of worry. I normally try…

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  • Meetings

      I had two meetings yesterday: one with Vernon’s doctor team and another with the Dialysis honchos. (I won’t count the 3rd with the kids’ hairdresser.) I must reiterate that I LOVE this doctor and his PA. As they spoke about their plans for Vernon (and listened to my requests) they reiterated their concern about his potential…

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  • Surgery

    Do you remember about six weeks ago, when Vernon was assessed for surgery to have another dialysis port put in his arm? And then two weeks ago when he was supposed to have the surgery? I was in Seattle but had arranged for my friend Sharon to sit with him while I was away.  However, there…

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  • Looking Forward, Standing Tall

      Last week Vernon’s case manager pulled me aside to tell me something about Vernon. Inwardly groaning at what new bad news was to come, I followed him outside. He rarely comes to me with news so I knew it wouldn’t be good, especially after the last week or so of Dialysis troubles. “It’s okay,” he…

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