Latest posts
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BINGO!
Vernon is out of isolation again, which means he is free to leave his room if someone is kind enough to move him. He also has a room-mate for the first time in 6 months. We had brought the record player and some of Vernon’s old albums, but we didn’t want to overwhelm this new…
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Spring Cleaning
Spring Cleaning: this was to be the weekend for it. We are halfway through the weekend, and I’d say we are more than halfway through the job. In my mind, of course, we were supposed to be a fresh, clean, organized home by this evening. Maki has been attacking his room (including under the bed) in percentages…
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Goodbyes
We said goodbye to Vernon’s parents today. Well, I did. Mum told him we were all going to lunch so he wouldn’t be too upset about the fact he might not see them again for a little while. He is still pretty confused about time, so for all I know, the next time he sees them, he…
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Heartache and Healing
I haven’t really known what to write about Vernon lately as it seems every day that there is a sign of progress, the next day is a step back…so with each success, there is the knowledge that it could be temporary. And that is tiring. “A hope deferred makes the heart sick, but a longing…
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Teardrop Explodes
It’s great having Vernon’s parents at the hospital because I know he is in loving company much of the day. I was able to take the last couple of days off and focus on my paperwork, which keeps growing. I don’t talk about these thing much on this blog because it would be a total turn-off,…
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Courage
Courage is not the absence of fear but the acquired ability to move beyond fear.” ~ Matthew Kelly There are so many great quotes about courage, but this one makes so much sense right now. It IS an acquired thing for me….my threshold for disappointment may be higher than it used to be, but so is my ability…
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Family Reunions…and Breakthrough!
“The bond that links your true family is not one of blood, but of respect and joy in each other’s life.” —Richard Bach Besides Vernon’s parents being here, this is a special family weekend for us, because it marks the first anniversary of my grandfather’s death at 97 (Grandma had passed away a few months before, nearly…
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42 Weeks
42 Weeks! I remember the last time I hit the 42 week mark for something I’d been waiting for. The the delivery date for the mystery child growing in my belly had come with great expectation and then…it went. Everything had been okay till then, everything had been on schedule, I presumed. My pregnancy symptoms…
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Two Wheeling
Remember last weekend, when Justine still couldn’t ride a bike? Fast forward to today, when I got this text message: And this accompanying video: Actually when I first mentioned that Justine was trying to ride without training wheels, I got some excellent advice from friends who had been through this themselves. I would have tried…
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Field Trip
Today Vernon got to go somewhere new, clear across town, just for a couple of hours. It turns out his nephrologist thinks he might be ready for the next part of his dialysis journey and made an appointment with a vascular surgeon for a consultation. Why am I highlighting all of these terms? Because if they are…